Відео

Bro just tell what u are telling no need to tell may be you are diagnosed with 😐

I woke up and my legs from the waist down were totally numb. I thought they were jyst alseep so i waited for them to wake up, and waited and waited..... i was at a friend's house and he had to go to work and kinda wanted me to get gone so he was rushing saying stop stalling i gotta go to work! I tried too scoot down the stairs on my butt knowing something was terribly wrong by then called the ambo they carried down the stairs got diagnosed that day

I had thoracic spinal fusion for losing my ability to walk 7 years ago almost with a long recovery. I had a flare up of paralysis this March too. Now A neurologist just told me that I really had GBS. I knew this all along too and they originally said that when i got to the hospital. I had unnecessary spinal fusion surgery

my dayghter digonesed gbd i m really worried about her any tips plz share

I survived with god's grace

A fantastic video. The information is positive and very hopeful . Thank you for sharing this.

I had GBS 10 years ago

Being diagnosed with gbs at only 16 years old was another phase of life,,i recoverd after an year...to anyone suffering from this,, nutrition and exercising is the only solution

I was diagnosed with this very tough time stay safe everybody

I was diagnosed with CIDP by my neurologist. I’ve had 15 IVIG treatments with no improvement. Got a late start 1 1/2 years due to neck and back surgery. They thought that was my problem. But it wasn’t. My condition seems to get worse after IVIG treatment every 2 weeks. Getting PT 3 days a week. Stuck in recliner can’t walk no balance loosing voice no strength very weak. Feeling helpless. What do I do. Dr said give it time.

How cure cipd

I really donate plasma doe

Excellent, honest video for someone trying to digest what their neurologist is presenting.

Our tenant is currently hospitalized. We want to help her, but not sure how. Trying to learn. She is a single mother, son is with grand parents, bit man this thing is wild.

I too have GBS. however I am a lucky one, GOD put a doctor at the emergency entrance door. He asked me to describe how I was feeling and when I said I had no feeling in my legs, feet, arms and hands, he immediately said it sounds like GBS to me. They immediately started me on intravenous treatment of ivig. I thank GOD every day for putting that doctor there. I believe he saved my life as I am almost completely healed (still some weakness in my legs), but I was home from the hospital after only 3 days.

I'm glad he made a full recovery

If anyone gets severe coldness in the lower legs/feet/toes, you can use disposable toe warmers. Even in warm/nice weather, my toes can get freezing cold and these help.

Thank you for sharing.

THANK U 4 this segment. I will share with my friend. He is 72. Early March diagnosis & on ventilator. It will be helpful to see an older person who has recovered. I hope to help him with his recovery. But for now he's in a facility that will work with him

One "adaptive device" I've used for failing grip strength is a channellock adjustable wrench from my toolbox. Good for bottle caps, packets of deli meat, zips, short/broken pull cords... G-clamps and vises are useful too - able-bodied workers are not superman; everyone needs a hoist or fork-lift at some point. No need to be ashamed of not lifting 500lbs, or 5.

I was diagnosed with idiopathic peripheral neuropathy in the year 2000. I've been treated solely with gabapentin, which works well for the pain. But in the last few months, I've noticed that doors are harder to open, and items I pick up seem heavier, even a can of coke. I went to a new neurologist as a result of a move from my previous city, and he did a nerve conduction study as a matter of routine for a new patient. The results of the study, along with my clinical symptoms, led him to diagnose CIDP. I'm scheduled to start infusion therapy soon. Since my nerves have been experiencing damage for 24 years, I don't know whether I will improve or not. I was used to the pain, but getting used to being weak would be another thing.

Like I said, same thing, as multiple sclerosis they’re renaming it to get more money

Same damn thing as MS they rename it

I was diagnosed with CIDP back in 2007. Ive learned a lot since then and am living an almost normal life again. A few tips to help anyone dealing with this disease: A keto style diet works best for me. Lots of organic healthy meats, veggies and fruits. I tried a vegan diet but it made it worse. A diet of good fatty meats, eggs and avocados is good because it helps to regrow the myelin sheets that was stripped off the nerve endings by the immune system. Cut out all processed food especially sweet foods. Sugar is your number one enemy. It’s best to avoid all forms of sugar even stevia etc. you may can get away with a “little” manuka honey. Avoid smoking and drinking any alcohol, including wine. Exercise as much as possible and lift heavy weights (at least what is heavy to you). This will keep you stronger than the disease itself. Workout your entire body especially legs and arms. This is how I regained my balance. Get plenty of rest. When showering. Switch from hot to cold to stimulate your nerves, ending your shower with cold. Get a vibrating foot massager to stimulate your nerve endings in your feet. By doing all of these things I am 90% back to normal without taking any steroids or ivig, haven’t been back to my neurologist in ten years after he told me I will be wheelchair bound if I stopped the treatment. I’m not advising you stop treatment I’m just saying that’s what I did. I didn’t abruptly stop, I slowly reduced the amount of steroids I was taking and weaned myself off of them as I was doing everything I wrote in the comment. The stronger I got the more I weaned myself off. Hope this helps someone

I'm 30 and just found this video I have Achilles lengthening because of this issue and IVIG I technically died during my last infusion BP 19/7 and I'm so glad to see that other people have dealt with this. I have never met anyone who just knows what this is without a lecture lol

Can strong chemo cause this to the nerves?

🤳🏼/🖕🏼/📔 ?

What is missing in this video is … is Guillian Barre a virus or bacteria 🧫🦠 ? Did he receive antibiotics if it was germ related and if so , what were the the antibiotics ? If it’s viral will it occur again ? I really don’t appreciate incomplete information !

To have a name for “IT” would be a huge blessing

Could someone tell me what are your early symptoms? I have tingling, pinching, burning, sensitivity all over my skin. My forehead slightly numb. I have been like this for over a week. It is GBS? Or anxiety?

I am 11 and have GBS now for a year. I can't walk yet but am getting stronger and can't wait to play basketball again

2024... This is the best capitalist commercial consumers can do. The future will be exactly like the movie 'Soylent Green'.

❤❤❤❤❤

I was diagnosed with GBS on November 22nd and after 3 weeks in Swedish Medical Center in Denver I am back in Albuquerque recovering. Nice to read there is hope for recovery. Would love to hear from any of you on tips to make my road back successful.

Please try C B D. ITS VERY GOOD FOR ALMOST EVERY THING AROUND YOUR BODY HEALTH. IT CURES ALMOST EVERITHING

GBS is caused by vaccine injury! they know but won't go against big pharma!

Just lost a friend to GBS

Nice video! Thank you!

Cómo se llama la fundación mi hijo tiene esa condición gracias

Been dealing with GBS for almost 2 years. Developed after catching Covid 19. It started in my right leg and then quickly paralyzed me from the waist down. I spent 7 months in the hospital. Had to go on dialysis and got a nasty bed sore...and other fun stuff. My body is slowly recovering and i can finally stand with help. I know it can be depressing and overwhelming but try to keep strong.

GBS, a common vaccine adverse event.

I'm 55 old, was diagnosed in 2019

This is wonderful.my grandson 12yrs old has had GBS its a scarey disease but he is taking little steps now ...he lost so much weight initially...., he also lost the will to live due to the excruciating pain ....but thankfully mentally he grew stronger to overcome those tragic thoughts. Thankfully by the Grace of God he is still Alive! 🙏 💙🙏

Was just diagnosed with CIDP yesterday but took forever to diagnosis

Helo help 😢

Damn this disease I’m 25 and got a chronic version of this within 3 months destroyed me spread to my cranial nerves suffering deafness and also full body numbness and sensory problems

is it contagious? plss do reply guys pls

i was diagnosed in 2019...still many problem i face like flue and body weakness.......

My daughter has Gillian-Barre syndrome. She in hospital. I 😢 its very scarrt

This video didn't explain the causes so I will explain what I know at least. One cause is when your immune cells attack your nervous system. Killer-T's to be specific. Say an unwanted guest like epstein-barr managed to make it into your peripheral nerves. Your immune cells would detect this disease and try to fight it. But they wouldn't just attack the pathogen, but everything else. Hence the damage to neurons. Sometimes your immune system is just stupid and attack with no notable cause. But mostly viruses and bacteria. Either way the end result is horrific.